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Monday, August 23, 2021

First Chemo and Fourth Radiation Treatment

 


Well today was Rick’s FIRST CHEMO treatment. They have been doing radiation on him and there will be a total of ten of those treatments. Radiation (first round which is his leg thighs and arms) Will end on August 31st. They will sneak some more radiation in later on.  Radiation is a piece of cake!

We packed up this morning, to head to Chemo knowing that it was going to be an all day thing.  A soft cozy blanket, (A little to warm for that one yet), a card game, Lap-Top computer (Robert sent to his dad just for Chemo appts), Cell phone, neck Pillow, (very useful that one was) Jesus Calling booklet, (God knows I really NEED THIS ONE), Gingersnaps. I carried THREE BAGS in there! I know someone thought we were just moving in! HAHA….

For the Tea, I made ½ Ginger and ½ Chamomile Lavendar and put it in a thermos.  YUMMMMY I must say! I am a bit surprised that Rick even liked it too.

Come to find out they have a huge snack bar! The only thing missing is the booze. We don’t drink anyway, but as of late every once in awhile I would probably tip a tote or two! So that will cut down on what I lug into the chemo sessions by two bags! HAHA….

So we (he) gets settled in and Megan, our (his) wonderful Nurse, says Let me get you all hooked up and then I will go over the paperwork with you, as she sets this 2” packet of papers on the side table.

She explains that first there is the saline flush to make sure everything is hooked up well and it all flows easily. Then comes the ZOLOF I think. Then there is the Benadryl bag, an anti-nausea bag, and I am sure I am missing one in-between. Each of those bags are about 20 minutes. Then we get to the REAL DEAL!  Megan gowns up in hazmat gear, and I am thinking that Rick and I will need to also, but then she explains since she is the one that is hooking Rick up, that she needs to be protected in case she spills because the Chemo is bad to get on your skin.

Ummmmmm     ok……A.N.D.…You are going to INJECT THIS INTO A BODILY VEIN?!??!  But I kept my mouth shut! 

She then goes on to explain everything in this packet from side effects to non side effects. From effects after the first 48 hours to effects beyond the 48 hours. From Constipation to Diarrhea! From Headaches to stomach aches. What symptoms to watch out for and need to make a phone call to them, or not….when or if, you need to go to the ER.  All the while I am really feeling more sick to my stomach than I should be. 

I kept asking Rick how he is feeling and he said fine….When she hung the Benadryl bag she said he might feel a bit tingly and woozy, (cause we all know BENADRYL is a sleep aid!) LOL…

NOTHING! I take two Benadryl capsules at bedtime to sleep and he got a big bag of that shit, IN THE VEIN! But that is good. I think… LOL

Right now, he and Cameron are up at the shop playing with the trike. I know he is itching to ride, (me too) but until we find out how he is really going to do on the chemo, which we really don’t know for a couple days or even a week for that matter, then the trike is off limits to ride. 

It has been a very long day, and my nights are even longer because I do not sleep well. I have pinched nerves in my hips and my legs are on the verge of Charlie horses 24/7! Not to bad during day when I am moving around, but stop and rest for the night, and then they hit ya. So I do not get much sleep. I do go see a back/bone/spine (whacha ma-call-it-doc) doctor on 8/23. Of course it is the LAST DAY OF RICK’S Radiation so I won’t get to hear him ring the bell! ☹!

Rick will have 6 chemo treatments 21 days apart which will last 4 months. I did ask his Chemo doc today about the type of cancer that Rick had and for how long did he think Rick had it. He said that Rick probably had the cancer in his prostate for about a year, but then when it metastasized to his bones it went apeshit! (he was a bit more professional and said moved quite rapidly). I asked him if it was an aggressive cancer and he said yes. But he also said that with the chemo therapies today, there are many types and they are approving like a 100 different kinds each month for the different types of cancers out there. There is hope that Rick can get a handle on this. Doc said that he will live with cancer the rest of his life, but he can have a good quality of life. So that eases the worry a little bit…… (JUST A LITTLE BIT)……. Will have to see what God has in store for us at this stage in our lives.

I found out that “Cancer” is a very lonely word! Lonely when you are first told you have it, and lonely because when people find out you have it, they are scarce! Cancer is a lonely path for those traveling it, and those that are care givers.  I took care of my mom when she had cancer and it was very hard. I am gaining more experience now, so maybe my path to follow in life when I retire is to be a friend to someone in need that is traveling this lonely path of "C.A.N.C.E.R."

After Megan hooked the chemo bag up, Rick told me to go grocery shopping. No sense in sitting there an watching the 1...2...3...1...2...3...4 drip drip drips of the IV bag.  So I went to Winco. I walked in with a mask on, (can’t breathe), and I saw a woman with no mask on. I asked her if masks were required. She said nope, and if they were she would have to hire out her shopping. She said God has a bigger plan, which I know he does. I don’t know what started it, probably me, I said that today was hubby first day of chemo.

I SPOKE THE WORDS OUT LOUD to another human! Reality just hit! The tears stung my eyes! I felt foolish! She asked what his name was and if she could pray for him. Between sobs I said that would be wonderful.

This woman was the most kindest and gentlest soul! She use to be a caregiver nurse till her last patient whom passed away in Feb of this year was gone.  She has grown very fond of him, just like a dad.  It hit her really really hard and she just can’t anymore. I get it. Hard not to get attached, ya know!  Sometimes our hearts break into to many small pieces that can not find their way back to be mended. Or it just takes a long time to mend. 

Anyway, we exchanged names and phone numbers. This woman was an angel in disguise.  She said to call her any time. She told me that If I needed someone to come sit with Rick, that she will be here in a heart beat! If I have any questions to give her a call, because she was a nurse to cancer patients! (What are the odds?)  Who knows, maybe I will take her up on that.  I just might need a shoulder some time. Someone to just listen.

When people step out of your life, there are others that step in to fill that void. Each and every friend in our life has something different to bring to the table of friendship.  Each one has value. 

The doctor could not stress enough that Rick’s immune system is going to be NIL! ZERO! LOW! To LOWEST! He just won’t have one! So he has to be very careful about being around anyone! That means Parker and Brady! And THAT JUST breaks our hearts! They start school next week and so that is why distance will need to be observed. Because we all know, school is where germs run rampant and come home on unsuspecting school children! So until Rick gets his immune system up and running again, we (HE) have to be very, very careful! 

First Isolate because of Covid,  Now Isolate because of cancer! DAMIT TO HELL!

I wouldn't turn down any prayers if you feel the need to ask God for some help to send our way! I pray every day to give me strength to get to the next day, and for Rick to get well enough to enjoy retirement and we can go on a long awaited bike (Trike) trip! Yep, we are planning one for the summer of 2023.......Just travel and go where the road takes us. Stay as long as we want to, wherever we want to. 

Oh yeah, we are also trying to sell the HARLEY (Click the Blue word HARLEY to go see the bike) that stands tall on two wheels. So if you are interested let us know. OR share it to someone you know.

https://www.cycletrader.com/listing/5017591098






Wednesday, August 18, 2021

Cricket, this is what it’s all about!

We worked a long time to get where we are today! Your 4 1/2 years old! 
 This.... is my world....
We made it! 










Tuesday, August 17, 2021

Things are starting to get real!

 

Things are ramping up and going to get crazy.
Keep us in your prayers that we will remain strong and persevere thru all of this.

On Friday August 13th, we went to Dr. LaWenda's office and met with Olivia and she went over all the test kits. What to do. When to do it. How much to do. I tried to take notes, but it just did not seem to work. Came home so confused.

There are 5. One of them is an all day test. Every hour you have to give up part of your body fluids in one form or another. 
An important test is the BRCA1 test kit that will determine if Rick has the ugly deformed gene that causes hormone cancer. 
The other tests are to test his body to see what vitamins, minerals and other things he is lacking or supplemental in. 

I shall take my own advice, and go....

ONE STEP AT A TIME!
We will git'er done. 


Today August 17th we go back to Dr. Foss office and Rick will get a Lupron injection in the buttocks instead of the one in his stomach which really hurt bad. But it was an emergency shot at the time, to stop the production of Testosterone immediately!  The Lupron shot will last for 3 months and won't be so painful this time.

Starting Wednesday, August 18th Rick will go for Radiation treatments at 5 PM each day of the week for 10 days. They only last about 15 minutes and I do not project any problems except maybe some fatigue. He is getting his upper arms and thighs radiated. 

His bones are quite brittle right now, the doctor said, due to the cancer in the them leaking all the calcium from the bones. He could break a bone very easily and so the radiation will help to put some strength back into them by getting some or most of the cancer out.
Fingers crossed this works because he does not follow doctors orders very well. 

Then on August 23rd. this coming Monday  he will start Chemo.
Our schedule on Monday is quite busy:
9:45AM arrive for labs
10:45AM: meeting with Dr. Hague
11:15AM: Start the Chemo which will last for 4 hours. Should be done about 4 PM.
Just in time to get to his Radiation appointment at 5 PM.

Initially Dr. Hague said that Chemo would be every three weeks for the next 8 months. I don't know if this has changed since it seems that things are changing weekly at this point. 

Dr. Hague said that Rick is strong right now, and he has every confidence that he will be able to tolerate this plan of attack on the cancer.

After this, our days are a mystery. As soon as it sorts itself out though, I will post an update.

Oh and our insurance company sent a notification that they are NOT APPROVING the NUELASTA that Dr. Hague wants to use to help Ricks body regenerate the good cells that the Chemo will kill.
The cost of Nuelasta is $3,000.00 to $7,000.00 per injection. 
Side effects of Nuelasta can be quite severe. 
Nuelasta would be a ONCE inject per Chemo round.

 Other drugs the insurance company does approve of is:
Neupogen, Udenyca, Granix, Fulphila, and Ziextenzo.
These do just about the same thing, yet cost way less, but you do have to take more than one injection.

So maybe the insurance company is doing Rick a favor. 
We will see.





 

Wednesday, August 11, 2021

Strong yet weak...........

 



I appear strong, yet on the inside I can crumble at any time!
The appointments.
The emotions.
The information.
The future!

Our calendar looks like a Bingo board. 

I am alone........

I try to stay positive.  We will get thru this.
Then I question, WHY?
The world has become a nasty place!

Covid has manage to take everything away!
Friendships.
Trips.
Jobs.
Love!

It now hosts:
Loneliness.
Isolation.
Laziness.
Hate.

The whole world has gone crazy!
Satan is running amuck and is out of control!

I lost two friends in the last month. They are the lucky ones. 
They are at peace!
What is peace?
I don't know anymore.
 
The road I travel now is lonely.


I was never much for unicorns,
Yet now they have meaning for me.

I am not sure exactly yet what that is.
Maybe because they are magical and I need some magical fantasy in my life to escape
the harsh reality that life is very fragile and can be gone in an instant. 








Friday, August 6, 2021

I'm Gonna Miss you! Billie Monahan

 Billie Monahan
November 15, 1956 - July 22, 2021

You can not think of Billie and not think of the Queen Bee!
She Owned it!

I remember taking this picture of Billie. We lived practically next door to each other on 7th Street in Umatilla. Our kids played together. Billie and I would hang together. 
This was taken at McNary Beach when we took all the kids swimming. This day is etched in my mind as a good memory and I wished we had more of them. 


Another huge memory I have of Billie is one Halloween. I had a little car, can't remember if it was my Volkswagen or my little blue square fiat. I got all dressed up as a witch and wanted to go play around in town. Of course Hubby was to embarrassed to go with me. He does not like attention drawn upon himself. Billie was ready and willing to go. 

We tootled off into town, and mostly drug the gut. 
(You old timers will know what that is.)
I did an outstanding job on my make up and the only think I was missing was a broom. 
Honking and waving at people got their attention and the double takes got me to giggling. 

We both smoked at the time, and I think I had caught my nose on fire lighting my cigarette, because we laughed so hard I had to pull over till I calmed down and had my wits about me to drive home. 

As time passes people move on. Billie was the first to move from the neighborhood, and we lost touch for a few years. 

I reconnected with Billie off an on thru the years. One time I remember going to her cute little apartment and she was showing me all the things she was sewing. PJ's for the grandkids and I really thought they were awesome. 

She worked at Rite Aide for quite some time and then went to work in the maintenance office at the hospital. I got a job at the hospital as the property manager and we reconnected. It was a joy to go to work everyday and see her smiling face. When she wasn't smiling I did something goofy and would get a grin at least. 

Work generally got in the way of having fun, as usual. 

I then quit the hospital as I wound up having some medical issues. 
They all worked out well for me.

Then I heard that Billie had some medical issues too. 
Then Covid hit and isolation took its toll. 
 But we mostly communicated via text.

I will miss Billie not being in this world of ours. 
I will miss her very much!


The above sums her up to a "T"

Beautiful! Beautiful! Billie! 
Gone way before your time!
We should of grew old together so we could of 
been rebels in the old folks home!


Till we meet again! 
With our angel wings on!